emma in a singlet and leggings perfoming a high karate kick

A Day in the Life – Emma

A Day in the Life - Emma

Woke up, got out of bed, took a bunch of dopamine. Living with Parkinson’s sometimes involves some crazy swings and roundabouts in energy, and general feelings of wellbeing. Yesterday I gave a good demonstration of how suddenly and shockingly I can crash. I was making pancakes for lunch, we were having fun making extremely large plate-filling versions of this treat and filling our tummies. Just before 1pm I took my regular dose of pills and then I ate a very modest sized pancake. Then my husband went out for chainsaw parts, my teenager biked off to a friends, and I was left in charge of Maia (nearly 4 years old) and Luka (an incredibly wise nearly 11 year old). Maia and I went outside for some imagination play, while Luka curled up with a book. Before going outside I turned off the huge pot of pumpkin soup we’d made, thinking just to be on the safe side, I won’t leave that bubbling away. Maia and I got deep into a game that ranged about outside. By 2.30pm I noticed I was still limping, and my back ached all down my spine. My energy supply was low. The pills I’d taken at 1 o’clock hadn’t really taken effect properly. Then I went inside and discovered I’d turned the element the pumpkin soup was on up to full power instead of turning it off.

I was horrified at myself. Amazingly the soup was saved, and the house didn’t actually burn down with Luka in it. But I raged and cried and beat myself up anyway. With an effort I pulled myself together but it was really quite hard to control my emotions under those conditions.

emma stood in the country by a river in an orange top.
Emma looking decidedly pleased with her orange top.

I’ve been conscious of what I eat for a while now, because there appears to be a big impact on my medication from food. Protein is often the culprit but volume is also a problem. I am eating as much as I can, but there is a limited timeframe each day when I can eat, and I can’t eat much meat anymore, and hardly any dairy, or eat anything more than a banana close to pill time, without a sizeable negative effect on my medication. 

I really want my medication to work. Without it I’m in pain and movement is about 10 times more energy draining. It is also a mission to keep myself from panic attacks, or massive amounts of crying or rage.

This could be a part of why my weight has dropped a lot over the last few years, but I’m actually not sure why exactly it keeps dropping.

emma in a singlet and leggings perfoming a high karate kick
She a lean, mean, fighting machine!

Losing weight is helpful in some ways, it seems to make exercising a bit easier. It is getting harder to find clothes that fit though, which don’t dangerously threaten to reveal my undies! I also really don’t want to lose anymore – I’m now 55 kilos, which apparently is healthy from a BMI perspective, but if I get to 50 kg I’d be underweight. It wasn’t really what I had in mind when I asked the universe for magic weight-loss powers!

If anyone else has experience with these issues, I would appreciate it if you could drop me a line, and let me know any ways of coping you’ve discovered.

kitty laughing into camera
Kiity Fitton - usually up to mischief.

Kitty Fitton is a motivational speaker, MC and comedian. She is also a full-time blogger and writer. She is mother to four small people and was very cross to discover she had Parkinson’s Disease.

Find out more at her personal site below. 

emma_k
Emma Kyriacou. Quite good at hitting things.

Emma Kyriacou is a real-life ninja. Taking up Karate to help fight her Parkinson’s Disease, she’s co-founder of Good Moves and is passionate about promoting exercise to improve mobility and neuroplasticity. (Is that a word? It should be.)

Find out more at her personal site below. 

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